As a mother of a special child, I often hear people say, ‘You are a resilient person’ or, ‘God only gives this test to those who can.’
Those words are beautiful to hear, but the truth is, this journey is much more difficult than outsiders think.
My daughter, Aisyah, was born with cerebral palsy. He is now nine years old, but his physical and mental development is very different from other children his age.
While the other children were playing and running, Aisyah was still completely dependent on us to eat, move, even just to sit properly. Every day is a struggle, and every night is a prayer for me to be given the strength to keep going.
I want to share a little about the daily challenges we go through. Starting in the morning, I have to make sure Aisyah gets movement therapy before she can sit up straight in her special chair. Preparing food is not just about cooking; it needs to be finely chopped and sometimes blended because Aisyah has trouble chewing.
He is also often stressed by loud noises or changes in routine, causing tantrums that can only be calmed down after hours.
However, the real challenge is not only in his physical needs. It also involves me mentally and emotionally as a mother. Sometimes I wonder, have I done enough for him? Have I tried my best to ensure that he gets the same rights as other children?
Little Rainbow
Dang MP’s Advice –
Pelangi Kecil, your journey as a mother of a special child is filled with inspiration. As mentioned, raising a child with cerebral palsy is full of physical, mental and emotional challenges. Congratulations on your success and patience so far.
Dang MP would like to remind you that it is important for you to take care of yourself so that you can continue to give the best for Aisyah.
Get support from family, friends or support groups that can help ease your burden. Find a community where you can share experiences, ask questions and exchange ideas. Through the community, you can find other inspiration, share your feelings and get support too.
You should also work on regular therapy with a professional for your child with a high commitment so that you can follow his development well.
Dismissing society’s negative views may be difficult, but remember that every small step you take is proof of your love and strength for Aisyah.
Keep up the good work, keep good communication with your family, and know that you are not alone in this journey.
Many people are willing to help and share their experiences. Most importantly, you have done your best for Aisyah.